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Getting paid to care for a family member in North Carolina

Yes. In North Carolina, a family member can be paid to give care through Community Alternatives Program for Disabled Adults (CAP/DA), Coordinated Caregiving and Home Care Independence. Whether a spouse can be paid depends on conditions set out below with their sources.

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Medicaid waiver

Community Alternatives Program for Disabled Adults (CAP/DA)

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Who qualifies

NC Medicaid beneficiaries who are 18 or older with severe and chronic physical disabilities that need the type of care usually found in a nursing home or hospital, or who are 65 or older and at risk of going to a nursing home.

The person must also need at least one CAP/DA service, based on an assessment coordinated by a CAP/DA case manager (NC Medicaid CAP/DA page). Under consumer direction, the beneficiary or a designated representative is the employer of record and hires a personal assistant.

Source: Fact Sheet: Community Alternatives Program for Disabled Adults (NC Medicaid, February 2025)Checked

Can a family member be paid

Yes. Yes. Relatives of all kinds can provide CAP In-Home Aide, coordinated caregiving and personal assistant services, employed by a home care agency, through consumer-directed services, or living in the same home as the participant. The relative must be at least 18, meet the hiring criteria set by the participant's care needs, and not have other employment that interferes with the participant's needs.

A spouse is covered by a stricter rule: see the next answer. The waiver also lists respite among the services relatives can provide, but the same section says a relative cannot provide non-institutional respite, so this record does not say whether a relative can be paid for respite.

Source: Application for 1915(c) HCBS Waiver NC.0132.R08.00, CAP/DA, effective Nov 01, 2024 (NC Medicaid)Checked

Can a spouse be paid

Depends. Depends. NC Medicaid's documents differ. The approved CAP/DA waiver lets a spouse be paid for in-home care only when one of three extraordinary circumstances applies: the participant has a cognitive limitation such as dementia or Alzheimer's disease or a related disorder, an unfamiliar person is more disruptive than productive, and the participant needs more help with daily activities than ordinary; the participant lives in an area with limited access to service providers and needs five or more hours a day of uninterrupted in-home care; or the participant has a secondary diagnosis of mental illness and the resulting behavior poses harm to an unfamiliar person, or past behaviors have alienated service providers. NC Medicaid's Clinical Coverage Policy 3K-2 lists a spouse among the relatives who can be hired, without those three conditions. The approved waiver is the governing document. Ask the CAP/DA case manager which rule applies to you.

Clinical Coverage Policy 3K-2 (amended September 1, 2025), sections 5.8.10 and 6.5.12, says "A spouse, parent, step-parent, child, sibling, or other relatives can be hired as the employee", while 6.5.12(d) bars a legally responsible person from consumer-directed personal assistance unless extraordinary conditions are met. Under the waiver, a spouse approved as the direct care worker can be authorized for 40 hours a week or less.

Source: Application for 1915(c) HCBS Waiver NC.0132.R08.00, CAP/DA, effective Nov 01, 2024 (NC Medicaid)Checked

Can a legal guardian be paid

Depends. Only in extraordinary circumstances. A legal guardian, Power of Attorney or Health Power of Attorney cannot be hired to provide personal care unless one of five conditions is met: no qualified aides are available in the county or adjoining counties and the person needs extensive to maximal daily help with bathing, dressing, toileting and eating; the person needs short-term isolation of 90 days or less for an acute condition and chooses care at home; the person needs physician-ordered 24-hour observation or supervision and the guardian cannot keep a job because of it; the person has specialized health care needs that only the guardian can provide, as medical records show, and those needs require extensive to maximal help with bathing, dressing, toileting and eating; or other documented extraordinary circumstances that would lead to an institutional placement.

An approved guardian can be paid for at most 40 hours a week of personal care, based on the assessed needs, and is not paid for household tasks alone, such as meal preparation, laundry or shopping.

Source: Clinical Coverage Policy No. 3K-2, Community Alternatives Program for Disabled Adults (CAP/DA) (NC Medicaid, amended September 1, 2025)Checked

Pay rate

Under consumer direction, the beneficiary or designated representative independently sets the pay rate for the personal assistant they hire.

Source: Community Alternatives Program for Disabled Adults (CAP/DA) (NC Medicaid)Checked

Hours limit

A relative or guardian who lives in the same home as the participant cannot be assigned more than 40 hours a week as a direct care worker, and a legally responsible individual can be authorized for 40 hours a week or less.

The 40-hour cap applies to a relative or guardian living in the same home and to a legally responsible individual. The waiver says a relative or paid staff member who does not live there may be paid overtime for hours over 40 a week.

Source: Application for 1915(c) HCBS Waiver NC.0132.R08.00, CAP/DA, effective Nov 01, 2024 (NC Medicaid)Checked

Structured family caregiving

Coordinated Caregiving

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Who qualifies

CAP/DA participants who have a live-in caregiver. The live-in caregiver takes care of the participant's health care needs with the help of a health care agency.

Source: Fact Sheet: Community Alternatives Program for Disabled Adults (NC Medicaid, February 2025)Checked

Can a family member be paid

Yes. Yes. Relatives of all kinds, and a court-appointed guardian, can provide coordinated caregiving, and a relative may live in the same home as the participant.

A guardian must be approved under one of the extraordinary-care categories.

Source: Application for 1915(c) HCBS Waiver NC.0132.R08.00, CAP/DA, effective Nov 01, 2024 (NC Medicaid)Checked

Pay rate

The provider agency receives a daily rate based on the participant's assessed need, low or moderate/high. The live-in caregiver is paid a stipend, which must be at least 50% of the published coordinated caregiver rate.

The reimbursement rate does not include room and board. NC Medicaid's Clinical Coverage Policy 3K-2 is not consistent on the stipend: section 5.8.13 says at least 50 percent, while its service definition in Appendix B says up to 50 percent. The approved waiver is the governing document.

Source: Application for 1915(c) HCBS Waiver NC.0132.R08.00, CAP/DA, effective Nov 01, 2024 (NC Medicaid)Checked

Other state program

Home Care Independence

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Who qualifies

People 60 or older who live at home, have home management or personal care needs, and cannot carry out one or more daily living tasks (such as toileting, walking, laundry or shopping) without help to remain in their own home. The person must be able to direct their own care or have someone who does this for them.

The Division of Aging does not provide the service directly: it funds local providers through grants, and the service is not provided in every county.

Source: Home Care Independence (NCDHHS Division of Aging)Checked

Can a family member be paid

Yes. Yes. The program lets an older adult hire family, friends or others as a caregiver or personal assistant.

A person who directs the care for the individual cannot also be the paid caregiver.

Source: Home Care Independence (NCDHHS Division of Aging)Checked

Can a legal guardian be paid

No. No. Family members with legal responsibility to the participant, such as a court-appointed legal guardian or the person designated as the representative, cannot serve as the personal assistant.

Source: Home Care Independence: An Operations Manual for Consumer Directed Service Programs (NC Division of Aging and Adult Services, revised to be effective 3/01/13)Checked

How to apply

Community Alternatives Program for Disabled Adults (CAP/DA)

How to apply

Contact a local CAP/DA case management entity in the county where the applicant lives to request a CAP/DA referral. NC Medicaid publishes a list of CAP/DA case management agencies by county.

If the person does not have Medicaid yet, NC Medicaid's How to Apply page at medicaid.ncdhhs.gov/apply explains how to apply (CAP/DA fact sheet).

Source: Community Alternatives Program for Disabled Adults (CAP/DA) (NC Medicaid)Checked

Phone

888-245-0179

The NC Medicaid Contact Center, the contact the CAP/DA page lists. Monday to Friday, 8 a.m. to 5 p.m., closed on state holidays.

Source: Community Alternatives Program for Disabled Adults (CAP/DA) (NC Medicaid)Checked

Home Care Independence

How to apply

The Division of Aging funds local providers to offer the service. Use the Home Care Independence Provider Directory on the program page to find a local provider.

Source: Home Care Independence (NCDHHS Division of Aging)Checked

Sources

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